Charity: Rare Disease UK
Rare Disease UK is a multi-stakeholder campaign that provides a united voice for the rare disease community and is run by the charity Genetic Alliance UK. Our aim is to improve access to treatment, care and support for the 3.5 million people in the UK who will be affected by a rare disease at some point in their lives. We raise the profile of rare diseases in the UK, to ensure that decision-makers and the public understand how living with a rare condition affects patients and their families. No one with a rare disease should be left behind because of their condition.